SOLICITATION NOTICE
A -- Web-based Resource Guide
- Notice Date
- 9/20/2010
- Notice Type
- Presolicitation
- NAICS
- 813910
— Business Associations
- Contracting Office
- Department of Health and Human Services, National Institutes of Health, National Heart, Lung and Blood Institute, Rockledge Dr. Bethesda, MD, Office of Acquisitions, 6701 Rockledge Dr RKL2/6100 MSC 7902, Bethesda, Maryland, 20892-7902
- ZIP Code
- 20892-7902
- Solicitation Number
- NHLBI-PB-HG-2010-335-RSF
- Archive Date
- 10/9/2010
- Point of Contact
- Rashida S. Ferebee, Phone: 3014352605
- E-Mail Address
-
ferebeers@nhlbi.nih.gov
(ferebeers@nhlbi.nih.gov)
- Small Business Set-Aside
- N/A
- Description
- THIS IS A NOTICE OF INTENT, NOT A REQUEST FOR A PROPOSAL. A SOLICITATION DOCUMENT WILL NOT BE ISSUED AND PROPOSALS WILL NOT BE REQUESTED. It is the intent of the National Heart, Lung, and Blood Institute (NHLBI) for the National Human Genome Research Institute (NHGRI), to negotiate/award a purchase order to the National Congress of American Indians (NCAI), 1516 P Street NW, Washington, DC, 20005-1910 to create a genetic and genomic research web-based resource that can be a directional guide for both Native American communities and research communities. Background: The NHGRI supports the development of resources and technology that will accelerate genome research and its application to human health. A critical part of the NHGRI mission continues to be the study of the ethical, legal and social implications (ELSI) of genome research. The NHGRI also supports the training of investigators and the dissemination of genome information to the public and to health professionals. The Education and Community Involvement Branch (ECIB) leads the Institute’s public education efforts. ECIB also advises the NHGRI director and senior staff on a broad range of issues regarding public education and community involvement. The branch initiates, develops, implements and evaluates education and community involvement programs to engage a broad range of the public in understanding genomics and its translation to health and society. The branch also acts as the liaison between the NHGRI and communities to further its mission, and oversees programs and initiatives for minorities and special populations. It is recognized that genomic research in Native American communities requires, careful consideration to ensure benefits are maximized and harms are minimized. Genomic research is moving rapidly, and it is likely to integrate more and more in everyday medicine over the next few years. It is important for communities, especially those that have historically been either left out or else mistreated by the research community, to carefully look at how these advances can or cannot be useful. The NCAI Policy Research Center (PRC) is a tribally-driven consortium of existing research bodies and primary researchers and is equipped to gather and assess data on conditions and trends in Indian Country. It serves to support and inform the policy development efforts of tribal leaders, tribal organizations, Congress, and the Administration with objective data and analysis. In so doing, the Policy Center can help to provide the tools necessary to inform public policy debates with meaningful information and assist in shifting the discourse in Native policy from a problem-focused approach to truly proactive, future-thinking strategy development. The goal of the Center is to assist tribal communities in gaining the information, skills, and experience they need to be involved in whatever type and level of research they desire. The Center has developed a five-module, interactive curriculum that gives elected tribal leaders the basic information they need to feel comfortable managing research in their community. The lead author of the resource earned her doctorate degree in anthropology and conducted field research within a tribal community. She looked specifically at opinions and knowledge around issues related to genomics and health. This experience gives the lead author unique insight into the process necessary for successfully consulting with Native communities. Her supervisor, also involved in this project, is positioned in between her organization, NCAI, and the tribal leaders it represents. This gives her the knowledge and insight into how a resource like this can best benefit tribal communities. Tasks: • Identify appropriate audience for such a web-based resource guide •Explore and collect existing educational materials to inform the audience of the basic terms in genomic research •Explore and report on past cases of Native American communities with genomic research •Explore tools and methods that have been or could be used (either existing or in need of creation) to engage tribal communities around genomic research •Explore and describe existing research policies/practices for genomic research (i.e. NIH data sharing policies) •Identify existing educational materials (or identify gaps where education is needed) to help community members become familiar with basic language and concepts of genetics research •Develop an ethics framework specific to tribes regarding genomics research, potentially as a set of questions or suggested principles to consider in deciding whether to participate in genomic research •Consult with tribes throughout development of resource •Consult with experts in the field of genomics throughout development of resource •Create resource that can be accessible to lay communities Deliverables: •Web-based resource guide for American Indians and Alaskan Native communities on: (1) Evaluating the benefits and challenges of different types of genetics research; (2) Making related decisions about genetics research participation; and (3) How to be strong partners in a genetics research study. •Consultation with tribal communities to evaluate resources created •Directory of educational materials to help community members become familiar with basic language and concepts of genetics research •tEhics Framework to guide tribes in decisions of whether to participate in genomic research Period of Performance: One year after award date. Government Furnished Equipment: None. This acquisition is being conducted under FAR Part 13, Simplified Acquisition Procedures, and is exempt from the requirements of FAR Part 6, Competition Requirements. The North American Industry Classification (NAICS) Code is 813910and the Size Standard is $7.0 Million. This notice of intent is not a request for competitive proposals. The determination by the Government not to compete the proposed purchase order based upon responses to this notice is solely within the discretion of the Government. Comments to this announcement, referencing synopsis number NHLBI-PB-HG-2010-335-RSF may be submitted by mail to the National Heart, Lung and Blood Institute, Office of Acquisitions, Procurement Branch, 6701 Rockledge Drive, Suite 6145, Bethesda, MD 20892-7902, Attention: Rashida Ferebee, by fax transmission to (301) 480-3345 or by email to ferebeers@nhlbi.nih.gov This action is under the authority of 41.U.S.C.253(c)(1), as set forth in FAR 13.106(b)(2), and HHSAR 306-302-1. Interested parties responding to this announcement need to do so by 9:00am Eastern Standard Time on September 24, 2010.
- Web Link
-
FBO.gov Permalink
(https://www.fbo.gov/spg/HHS/NIH/NHLBI/NHLBI-PB-HG-2010-335-RSF /listing.html)
- Place of Performance
- Address: NIH/NHGRI, Bethesda, Maryland, 20892, United States
- Zip Code: 20892
- Zip Code: 20892
- Record
- SN02289132-W 20100922/100920235134-36fdf17e4f66f49d05d6e24c16a2fb10 (fbodaily.com)
- Source
-
FedBizOpps Link to This Notice
(may not be valid after Archive Date)
| FSG Index | This Issue's Index | Today's FBO Daily Index Page |